I will also take part in an additional optional sub-study involving pharmacogenetic testing, put very simply, it will help work out who this drug will work for and who it won't from a blood test, I guess it's similar to that Betaferon story about a test for that drug that will determine whether it will work for a particular person from a blood test. It's all about your genes!
Normally they do a ultrasound on your pancreas (to get a base reading), but they had trouble finding mine, that's why I needed to have a cat scan, the trace they inject into you for the cat scan makes you feel like you wet yourself quite trippy but not too bad at all. The trial goes for two years, Deanna's blog about this trial has more information, no use reinventing the wheel
I didn't have lung function tests like Deanna did though, don't know why and I forgot to ask today, must remember to ask next time.
Anyway I will update as the trial goes on!